Visiting/caring for my mum
It All Begins Here
This was written for the Keynote talk ‘The Art of Care: How the study of care
aesthetics reveals a new direction for person-centred practices in dementia
care’ – speaking alongside Professors John Keady and James Thompson
UK Dementia Congress: 18th November 2025
The Tom Kitwood Memorial Address
I used to go twice a week
It was never easy but as her Alzheimer’s has progressed it has got harder and harder
How do you care for someone who sleeps so much?
How do you care for someone when they can’t see or hear you?
When they don’t always know it’s you?
Mum has always had beautiful nails
She still has great nails
So now I go, and I paint her nails
Well, I go with the polish
With the intention
Painting them depends on what she’s doing with her hands
Is she is fast asleep, then it can be hard to move her hands into the right position
And sometimes she gets cross if I try to do that
So instead, on those days, I watch her sleep
Sometimes, if she is on the couch in the lounge and the seat next to her is free – I sit down and sleep next to her.
Well, I don’t ever actually sleep but it feels nice to be with her, doing what she is doing.
How do you care for someone when they sleep so much?
How do you have a conversation when they can’t hold a conversation any more?
How do you let go of what you would like compared with what you have?
We did a lot of things together before.
Theatre
Travelling
Laughing
Gossiping
Shopping
Playing cards
Eating
Drinking
Red wine
So, now, I just do her nails
But it isn’t ‘just’ anything
With the nails comes touch
holding her hands,
talking to her,
describing the colour,
blowing them till they are dry,
admiring them,
showing them off to the staff.
It’s never just anything.
It’s funny how huge small things become
I do Mum’s nails.
I care for her.
Jenny Harris
November 2025